U doctors find treatment for painful, lethal skin disease

  • Article by: JOSEPHINE MARCOTTY , Star Tribune
  • Updated: August 11, 2010 - 8:37 PM

U doctors have found a treatment for a painful and lethal skin disease via bone marrow transplants. Amid big risks, they gave hope to an 8-year-old boy and others.

  • 31
  • Comments

  • Results per page:
robi0304Aug. 11, 10 4:42 PM

What wonderful and fantastic news to hear today! Congrats to John Wagner, and all researchers who contributed to this breakthrough. Keep up the great research and scientific study!

31
1
hope4allAug. 11, 10 4:58 PM

for those children who have this disease I'm sure it's really hard on the parents as well. If it were my daughter I would be devistated!

18
0
dontletmegetAug. 11, 10 5:07 PM

that's probably affecting 99% of the population that hasn't gone organic. The poisoning of America continues because of food industry and Pharm companies.

7
24
dontletmegetAug. 11, 10 5:10 PM

the FDA should allow more testing. No wonder people go to Mexico; they have no choice except death.

13
2
karastiAug. 11, 10 6:50 PM

It's nice to see work being done in a positive direction. My cousin has a rare lung disease. The most effective treatment is not available here, and he has had to travel to the Dominican Republic twice, at a cost of $60,000 per trip, to get the treatment that may save his life. He is 40 with 3 young children, too young to die from something that has treatment. We need to fix this system, it's far too broken. I do agree with dontletmeget, as well. However, it's easier to have sympathy for someone who has a genetic disorder in which they have no say in having it, than it is to have sympathy for those with completely preventable diseases if they ate better.

12
0
klporterAug. 11, 10 8:47 PM

Gimme a break!

The solution to MSG is clear: if it bothers you, don't eat it.

These kids (with whom I have first-hand knowledge) are essentially allergic to themselves. This is a terrible, disfiguring, painful and debilitating condition. The evidence truly is still out as to whether SCT is a viable answer, but the early results show some promise.

IMO, this is far more important work than MSG. MSG is avoidable in terms of life style choices; conditions like EB aren't. And EB doesn't just make one uncomfortable for a few days, it kills. IMO, this is exactly the kind of work the FDA and the NIH should be funding.

18
0
triodeAug. 11, 10 9:01 PM

Without President Obama signing the executive order that effectively legalized stem cell research, and subsequent action by the Democratic Congress, this would not have been possible. Republican candidates for office are beholden to the pro-life movement, which opposes all stem cell research. If you vote Republican, you are voting for people who think it's more important to maintain fealty to religious extremists than to provide medical treatments like this.

11
14
aydx0001Aug. 11, 10 9:06 PM

I've read this first page a couple times and nowhere in the first five paragraphs, title or photo caption is the disease name mentioned. This is poor writing.

3
14
MellersAug. 11, 10 9:22 PM

What a heart-breaking yet heart-warming story. I'd donate bone marrow in a heartbeat if I could, medically speaking. I was on the list until I was denied after being diagnosed with Leukemia (remission for nearly 4 years-YES!). Being matched is rare-I never got a call in the 11 years I was on the list. Please consider being on the bone marrow donor list!

16
0
aydx0001Aug. 11, 10 9:23 PM

On the 2nd page...do the editors/authors understand the attention span on e-articles is ~2 paragraphs?

3
16

Comment on this story   |  

ADVERTISEMENT

question of the day

Poll: Could you give up your car?

Weekly Question

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

ADVERTISEMENT

Connect with twitterConnect with facebookConnect with Google+Connect with PinterestConnect with PinterestConnect with RssfeedConnect with email newsletters

ADVERTISEMENT

ADVERTISEMENT